Friday, 12 October 2018

Is there such a thing as too many doctors involved in your care?

Things have been hectic for me, I now have so many doctors and hospitals involved in my care that I'm so exhausted- ok, that sounds like a serious ungrateful moan that I would have been disgusted at myself for saying even six months ago when I was desperately trying to get more doctors, more opinions and more help... and well that's exactly what has happened..

When I went through a stage of being completely bed bound - I sometimes couldn't even get up to go to the bathroom, meals were fed to me and I struggled to see any positives in my days... I would spend awake hours in bed researching EDS doctors, hospitals, pain specialists, gut specialists... and my old GP was so fantastic that they wrote ever referral for every print out and research I had done on my latest doctor find. However, I am now in a place I see several pain specialists, several gastroenterologists, several biofeedback departments... etc. I receive conflicting opinion and I almost feel more confused than I did six months ago..

Me in hospital 

On one hand I have doctors trying to change my medication I have been on for years that works well for some things, and my other doctors saying I can't come off it. Meanwhile when I discuss this yo-yo advice and treatment to my GP they mainly give me the advice that it is my treatment, and body and that I need to cut out doctors that I don't think are assisting with my management... 

I feel a lot of pressure to undertake a decision to no longer see certain doctors, to follow one treatment for three months and then another the next. Do I trust my doctors that have known me for years and seen whats worked for me and what hasn't? Or do I trust my more recent doctors that want to restart my treatment with a fresh perspective?

I am wondering if any of you out there have had this situation involved in your care? How did you make a decision? I would love to know. Hope you are all doing ok.

"The Hopeful Chronic"

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