Sunday, 15 July 2018

How my life has changed since Ehlers Danlos Syndrome

I spent the weekend away with a friend a few weeks ago, we have known each other far longer than me receiving my diagnosis's and sometimes, I need to see people that knew me "before".. Do you ever get that?

We caught up health wise on my treatment plan, and how I am coping.. I explained that there is always a difference of attitude to those that knew me before I was unwell and those who have met me after. 

I have met countless people since receiving my diagnosis's and the day my life changed forever (not just doctors, but (now) friends and acquaintances.. yet there is always this dark cloud overhead that my chronic illness which inevitably need to be addressed at some point sooner or later.. Whether thats  from them watching me take my vast array of regular medication, the struggle of food and drink, me cancelling at the last minute, or the more dramatic route, when I have a symptom!


I have always been an upfront person, it's just in my character I don't like to skirt around issues, and I believe the only way to approach things is head on, so mainly I meet people and tell them within the first few times of us meeting if (I feel it is necessary) as I may be interacting with them, they are a friend of a friend, etc..

Never is there an appropriate time to tell someone you barely know that you are chronically sick...

On the outside they see a young lady, in her twenties, trouble free, smiling, made up and looking presentable... which often amounts to people finding it near impossible to understand the extent of the pain I experience on a regular basis.

Fortunately, I consider myself lucky, my friends that have been with me since getting sick have been incredible, I can honestly say they have seen me through the stages pre, during and (the stage I'm at currently) post receiving my diagnosis.. If you have read my blog you'll know there are so many things that come hand in hand with getting sick, besides from the physical symptoms, your whole perspective on life changes, what is important to you, your goals, those around you, appreciation...etc! 

I see the world in a whole new light.

I can honestly say, despite everything I wouldn't go back to the person I was before I was sick, yes I often miss my "old" life, but whether I'm with old or new friends my appreciation for life and them is far greater now than it ever was, not to mention I have met some amazing people!

"The Hopeful Chronic"



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